Surgery, part 2. [Life ]
Posted on: 2012-07-08 20:44:13

OK, so here's what happened after the surgery, or as much as I can remember of it. I woke up in what I assumed to be a recovery room with an oxygen mask sort of leaning against my face. The nurse who saw my eyes open told me to breathe deeply, so I did for a bit, then she moved the mask and periodically reminded me to breathe deeply. I complained (or tried to) that my mouth was dry and she put a different mask up near my face, one that blew hydrated air (uh, is that how it's called?) to help alleviate the dryness from having had my mouth open for a while. Ian told me later that the surgery took 1 hour 45 minutes. Took no time from what I could tell. Hell, I hadn't even noticed being put under and just woke up here kind of confused. Dr. Moss wandered in at some point, and while I know he talked to me, I had little idea what he said. I must have forgotten or was unable to pay much attention at that point. I do remember attempting to smile at him and giving him a thumbs up. I was in that room for a while, and it was kind of funny because every nurse in the place had to stop by to look at the roof of my mouth. Seriously. They left a flashlight beside my bed so they could ask me to open my mouth so they could look at the crater. I guess they had all heard about the huge tumor and wanted to see where it had been, especially 'cause you could see all the way to my skull. Katie says nurses are curious people like that, lol.

After hanging out in that room for a bit, I vaguely recall being wheeled away and was surprised to see myself back in the room where I had started. I figured this meant the husband was around somewhere with the little brother. Sure enough, they were trooped in, and there was some random conversation that I didn't quite catch or pay much attention to. My head was foggy, my throat hurt, and I felt like I was moving even though I wasn't. When the husband and nurse went to sit me up, I felt even more dizzy. The nurse left for some reason, and within no time at all, I was throwing up in a trash can that Ian had grabbed for me. Apparently it's not uncommon for people to react to anasthesia (however that's spelled) like motion sickness, and I get motion sick pretty easily. I threw up again at least twice more at the hospital, might have been three times. They had given me water to sip and orange Jell-O to nibble on, and I threw all of it up. After some more recovering, the husband helped me get dressed and ready to go. They put me in a wheelchair, and I clutched one of the hospital's barf bags on the trip, figuring that the motion was going to make me sick again. It didn't, but when we went outside the heat nearly bowled me over. Rook and Ian helped me into the van, and we took off for CVS. Ian went inside to get the liquid Lortab and some other stuff, and Rook stayed with me until I begged him to go inside to get me a bottle of water. It was burning up out there in the van and my throat was dry and painful. Rook got me "Smart Water," and I wondered if he was being snarky, 'cause he's like that. We finally made our way home where I ended up on the couch and didn't move much other than to drink water and throw up some more orange Jell-O. I love the hospital's barf bags. I could throw up in those all day, I mean, if it weren't weird to do so or like a disorder or anything. I guess I should say, if I'm gonna puke, I wanna puke in those things. Luckily, the hospital gave us a half dozen barf bags, all but two of which have been used.

Well after the fact and when I was more aware of my surroundings, Ian told me what Dr. Moss had told him. The surgery had gone well, and Dr. Moss was expecting a good recovery. He was happy with the way the tumor was shaped because it didn't have tendrils or weird bits coming off of it that might indicate malignancy. The tumor was pretty round and smooth and turned out to be about the size of a walnut once all cut out. Dr. Moss had given Ian pictures of the surgery, before the tumor was removed and after as well as the tumor lying on a table somewhere. If I feel up to it, I might scan them in and put links up to them so the less-than-faint-of-heart can have a look. While the nurses at the hospital had made it sound like I'd be on a clear liquid diet for a while then a full liquid diet a while longer, then soft foods for quite some time after that. Dr. Moss, however, told the husband that if I asked for steak whenever we got home to give me steak. He said my body would know what it wanted, and so far it's been pretty accurate. After the pain of the biopsy a couple months ago, I knew what would stick to the roof of my mouth and went from there.

And speaking of biopsies, they're going to do several on Mr. Lumpy, sending some of him off to the Mayo Clinic again. They still don't know for sure what kind of tumor it was or what caused it, plus there's still the fear it's malignant despite the signs pointing to benign. I'm curious to know what it really was, but I'm far happier it's gone. Tentatively, the biopsy results should come in sometime next week.

As for recovery, I'm doing OK for now. The scabs from the tonsillectomy are going to start coming off sometime this week, and that's going to suck majorly and be totally disgusting. Probably will be tender as well. Dr. Moss said that the roof of my mouth should start growing back about 2 weeks after the surgery, and that's likely to take a month or more before it's back to pre-tumor normal. Dunno about where the adenoids were removed; guess it'll all come out in the wash as well. As for being a fully functional person again, I dunno how long that will take. As it stands, talking hurts and is awkward, so I'm sticking to the dry erase board as much as possible. Even once my throat stops hurting so much, the roof of my mouth will still be tender and will likely make talking difficult. I'm not getting a whole lot of calories each day, and what calories I'm getting are mostly from liquids like soup broth and popsicles and Jell-O, so I'm weak and can't do a whole lot before tiring myself out quickly. I can eat some soft foods like mac & cheese or soup noodles, but I can really only eat small amounts because the act of chewing even a little tends to make my jaws and throat ache. There's that and my stomach just doesn't want to handle much food right now, so I stick to water and small amounts of food throughout the day. I drink tons of water. I always have water near at hand, which is good because I need to stay hydrated to heal. I am looking forward to being able to eat more soon, but there are some things I won't eat for some time like potato chips or toast or anything else scratchy that will irritate the crater. I'm already having fun with some foods getting up in there and I have to poke around with my tongue to get them back out. Creepy, let me tell you. The edges of the crater are a bit jagged in places and getting stuff stuck in there is high on my list of "stuff not to do." It's going to be interesting the rest of the month to figure out new and creative ways of eating. I've already lost 7 pounds since the surgery last week. I don't expect to lose more, but I could. Madness.

At any rate, I'm getting tired and my throat's feeling tight and achy so I want to lie down and relax. Glad I'm not snoring much anymore. That was freaky the first couple nights because I never snore, and here I was waking myself up with this newfound snoring thanks to the out-of-whackness of my throat. So quiet relaxation time, here I come. :)

Oh, and for some odd reason, comments on my page don't seem to be working, so sorry if you've been trying to comment and can't. We'll work on that.

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Surgery, part 1 [Life ]
Posted on: 2012-07-04 08:56:49

Don't expect this to be typed all nice or anthing because I'm still recovering from yesterday's surgery. I figure what's a few typos? I just has my adenoids, tonsils, and a tumor the size of a walnut removed. I'm entitled to some bad spelling here and there. So here's the run-down on how yesterday went or as much of it as i can get typed before feeling too blech to confinue.

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Benign metamorphic adenoma [Life ]
Posted on: 2012-06-25 07:29:59

Haven't posted here in forever. I periodically think of things to write, but I never get around to typing them up. For this, though, I think a lengthy post is necessary, so I'll try to muddle through despite being horribly distracted by life right now. I suppose I'll begin in the beginning because it's the easiest place to start.

Earlier this year during my typical "sinus infection/sore throat/earache" period, which unfortunately lasts a while, I noticed a lump in the roof of my mouth, kind of like if someone put their finger in my nose and pushed down really hard to leave a finger impression through the bone. It didn't hurt, it didn't burn, it didn't itch, it didn't do anything, and if I couldn't touch it or see it, I wouldn't have known it was there. I figured it had something to do with my rotten sinuses, so I left it alone, figuring it'd just go away when the "sinus infection/sore throat/earache" period went away. Well, it didn't.

I went to the doctor for unrelated aches and pains and figured I'd point it out to him because it had been maybe a month or so since I first noticed the lump and it wasn't going away like I'd expected. He poked at it, went "huh," then directed me to a local ENT. The appointment with the ENT wasn't for like a month, and in that time period, the lump doubled in size and even became somewhat mottled at one point, though it went back to a uniform "roof of mouth" color before my ENT appointment. The ENT poked at it, went "huh," and asked me a bunch of questions about the lump as to how long it had been there, if it hurt, yadda yadda, and he set up an appointment for a CT scan. He didn't know what the lump was, but he wanted to see if it was invading the bone or other tissues in my mouth. He also did a scope of my nose, which felt weird, and saw that it wasn't invading my nose or anything, so the lump was local to the roof of my mouth. At this point, both doctors had referred to it as a cyst or fleshy mass because no one knew what it was. Maybe the CT scan would help!

It didn't, really. The CT scan revealed that the mass wasn't cystic at all, but at least it wasn't invading the bone or surrounding tissue, so the possibility of malignancy was reduced though still possible. Dr. Moss numbed the lump, stabbed it with a metal straw, used some crazy scissors to snip bits out of it in a few places, put those bits in a jar, then stuck the jar in his lab coat, presumably to take it to a lab somewhere. Left with holes in my head, I lisped for about two weeks and was reduced to eating soft foods only on the right side of my mouth, away from the lump, which was slightly bigger than before. The biopsy results were supposed to be in after a week, but I was called and told that they weren't in after a week and a half, so I had more time to heal as they worked. If the biopsy didn't show anything, he was going to do a deeper biopsy, and I wanted fewer holes in my head so I figured he could take all month with the grisly bits he had removed from the mass.

When the results did come in, it was in the form of a phone call to tell me that they had had to send the mess to the Mayo Clinic, and the Mayo Clinic couldn't determine exactly what the growing mass was in my head. They called it a "benign metamorphic adenoma," but over the phone and at work, I misheard them and thought they said "adipose," which is a lump of fatty tissue, not a normal thing at all for the roof of the mouth. An adenoma is basically a tumor that occurs in glandular areas like the salivary glands. "Benign" sounded good because that meant it wasn't spreading and I wouldn't have to have chemo, and "metamorphic" just meant something to do with it growing, which it still was. It was moving further to the left side of my mouth, getting near the gumline, and it was pushing back onto my soft palate, not mention being thicker in general. Plus there were two holes in it, making it appear a vampire bit me on the roof of my mouth, those sick vampires.

Another appointment was made to talk about the results of the biopsy and set up a date for surgery because even at the get-go, Dr. Moss told me that I would have to have surgery to get rid of it one way or the other. By the time this appointment rolled around, the lump had gotten even bigger, pushing further into the middle of my mouth and further along the gums, now threatening my molars. Dr. Moss wanted this thing out NOW because the rate at which it was growing made it more likely to be malignant than not, and removing it might screw up my teeth unless we got it out ASAP. He wanted to do it June 26, but seeing as how that was only four days after our appointment, I didn't think I'd have time to get babysitters scheduled or get time off work without screwing everyone at the library up. Besides, if we did it July 3, I would be able to spend July 4 with Ian because he'd have the day off work, and trust me, I want the husband around. He puts up with my shit all the time anyway, and since he can't be there for the surgery, I at least want him there the day after.

So we scheduled the surgery for Tuesday, July 3. He's going to do a nasal scope just in case because while the first one was OK, he wants to double check to make sure nothing's growing in there either. He's going to remove my adenoids, which should help with my chronic sinusitis, and he's taking my tonsils out (he's always called them "cryptic" anyway, meaning they're a little abnormal to begin with), which will get rid of my tonsil stones plus my chronic tonsillitis. He's removing those bits just because he'll be digging around in there with a knife anyway. The real fun will be the tumor. He's going to have to cut a centimeter all the way around it, then scrape it out all the way to the bone, taking some of my gums and soft palate with it. This will leave my skull exposed and only about half of the rest of the roof of my mouth left. The blood vessels, salivary glands, and skin will gradually grow back over the course of about six weeks, but in that time period I can't have any acidic food for fear of corroding the bone (plus it'll hurt like a bitch) or any crunchy food for fear of scratching the bone. Any damage done to the bone will be trapped under the skin once it grows back, and the chance of infection is pretty dangerous. I'd rather he not have to remove the skin again just because a bit of Dorito got lodged in my skull, so I'm following the liquid diet then soft foods rules very closely for those six weeks. The liquid diet probably doesn't have to last that long, but seriously, who's going to want to eat much of anything with their skull sticking out?

I'll be on pain killers, to be sure. In between, I'll be able to take liquid children's Tylenol to help with the inevitable fever from the tonsillectomy and adenoidecotomy (if that's a word, which I doubt it is, but I'm too lazy to look it up). Regardless, being on a liquid diet and more or less being unable to speak is going to suck majorly for the first several weeks. I had trouble enough talking with just the holes from the biopsy healing. Imagine not having half of the roof of your mouth and carrying on a conversation. Not happening. I have a dry erase board that I'll keep with me on the couch so I can communicate with my caregivers. My little brother Simon is taking me to and from the surgery and will watch me during the first dangerous hours, then Ian will take over on the 4th, with Simon coming back to stay with me the 5th while Ian's at work. My older sister Katie, who is studying to be a nurse, has volunteered to come down and stay with me the weekend, and it'll be awesome having someone who's familiar with dealing with invalids around, plus she'll be fun to knit with since we won't be able to carry on conversations. After that, I should be out of the woods, more or less, but I might recruit other family members to come stay with me just in case I'm too weak or cranky to take care of myself. I'll go back to work part time after two weeks off, depending on how well I feel. I won't be able to work at the desk with the public for fear of infection (those books are gross, seriously), but I will be able to sit somewhere and work on the databases or grant or websites, though I still won't be talking much, so I'll probably drag my dry erase board in. It's going to suck being silent, but it's going to suck more not being allowed to drink Mello Yello for over a month. Well, OK, not being able to eat for several weeks and then not being able to eat normally will suck too, but I'm sure I'll get used to that. I'll never get used to not talking.

So there you have it. My tumor in a nutshell, or in my mouth where it actually is. Once Mr. Lumpy is out, they'll send it off for more testing to try and determine what it is, and if it turns out that it is malignant, I get to do radiation therapy for a while. Otherwise, it's just a matter of getting it hacked out and then healing up afterward. July is going to be a long month, but I'll get through it. I have plenty of books, Pokémon games, yarn, and company to keep me going. I'll try to post to my Facebook page periodically to keep everyone apprised of what's up, though I might not be too great at responding. This post was pretty long-winded, and it would have been better in sections over the period in which Mr. Lumpy was growing, but I'm easily distracted and not so great at keeping my blog up. Maybe I'll post again next week after the surgery. Maybe I won't feel like it. We'll see.

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In like a lion [Quickie ]
Posted on: 2012-03-03 00:01:45

The husband and I weathered the thunderstorms and nearby tornadoes today. We even swung by Taco Bell in between squalls. I sometimes wonder if it'd make more sense to move to someplace vaguely less dangerous weather-wise, but we'd likely be trading all of Indiana's bad climate problems for something like earthquakes (which can happen here too, obviously) or deep

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NaNoWriMo preparedness [NaNo ] [Books ]
Posted on: 2011-11-22 08:33:08

The husband is sleeping behind me, so I don't want to kick on WoW and do a couple dailies before work 'cause I'll probably wake him up. Then again, probably not. He could sleep through damn near anything. Regardless, I'm attempting the role of a loving wife, so we'll stick with the first statement. Instead, I figured I'd type a bit because it's relatively quiet, but I'm sort of stuck

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Hate the holidays [Atheism ] [Rant ]
Posted on: 2011-11-20 21:47:52

It's nearly Thanksgiving, and after that, there'll be nothing on air but Christmas commercials, Christmas music, and people bitching about the so-called "War on Christmas." I hate that. I hate December for all of that. I hate the fact that if I tell people I hate Christmas, I get accused of being a Scrooge (Christmas reference) or Grinch (Christmas reference) rather than someone

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Posting for the sake of posting [Quickie ] [Gaming ] [Writing ]
Posted on: 2011-05-19 09:44:41

I know I haven't posted in a while. I know I haven't read any of the pages I used to frequent, which is obvious because I haven't updated my links page in forever. I may spend a bunch of time at my computer, but very little of it is on the internet. Lately, all I've been doing is playing Pokémon, crocheting, watching TV series that Ian likes, and more recently working on the novel

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Pokémon [Gaming ]
Posted on: 2011-03-08 08:28:49

Well, as if I weren't already distracted enough with my latch hook rug, crocheting, knitting, and trying to learn how to tat, I'm distracting myself even further now that I have purchased Pokémon White for the DS. So far, I've defeated two gym leaders and gotten the first two badges, and I've caught somewhere around a dozen or so different types of Pokémon. It's interesting what

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Porta-pockets! My latest knitted project. [Mobile ]
Posted on: 2011-02-16 08:25:04


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I sometimes wear skirts to work, and none of the skirts I have have pockets in them. This is my solution: a scarf with pockets at the ends so I can wear it around my neck and toss whatever I need in the pockets. Generally that just means my lip balm, flash drive, and maybe a pen, but if I really wanted, I could carry my phone around or what-have-you. I can't remember just when I

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Kitty has started taking over our chairs. Move over sofa! [Mobile ]
Posted on: 2011-02-12 14:00:10


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March 2012 EAD
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Erin A. Doyle 2003-2012